Tuesday, May 22, 2012

A Visit with Dr. Javle's Physician Assistant....

Radiation was at 12 today and all went well. The people in radiation are just full of hope. Full of good encouragement knowing that each and every person climbing on that table to be zapped...needs encouraged....or needs some hope - call it what you want.

Then my appointment with Dr. Javle was at 2. After about an hour and a half, we were called for vitals and then taken back to a room. I saw Jackie (his PA) last time but didn't think I would have to see her again. I guess I feel a little cheated. You can tell she is a little hesitant to answer the tough questions. They needed a copy of my drivers license to do the extensive research on which drugs might work better on my tumor. They will use the tissue from the liver biopsy taken a couple of months ago. Should know more when I go back in 3 months or so....

I told Jackie my radiation team was so positive the radiation would do some good...even if just a little....she said...um, not so much. WHAT? She said our hopes are... it will shrink or be shocked into being stable, but it could also go elsewhere in my body since the only place we are treating for cancer is around the liver area. Hmmmm.....I guess I am a little taken aback by the thought they never told me any of this before....that it can go elsewhere in my body. I go back in 6 weeks on July 11 & 12 for a PET scan and a visit with Dr. Javle (or Jackie). The PET will show cancer anywhere in my body. I will not do any chemo when I return home since the radiation is still working for 6 weeks. Jackie says I will need this time to rebuild my strength so take advantage of it. I am going to keep the Faith by keeping a positive attitude.

On a more positive note, I was looking at my blog posts which I do occasionally just to refresh my memory on my feelings, faith, and hope throughout this journey. Last Wednesday, I had a comment from a lady I had never heard of. She is from the communications/media department at MD Anderson and had been on my blog. She is interested in talking to me.....We are meeting Friday morning so I was overjoyed she reached out and wanted to talk to little ol' me from Olney, Il.....Home of the White Squirrels. I will keep you informed but if it is top notch secret, I will not be able to tell you....  :-)

I am feeling pretty good today. No nap so far and it is 4:35.....  We pick Sarah up at Hobby Airport around 6ish tonight.

Only God knows how my journey will go. The bumps, curves, and turns it will take. But one thing is for sure, I will follow his will every step of the way. He will guide me, direct me, and I will be there....right beside Him all of the way!

Keeping the Faith~


  1. Hi Patty,

    I have been reading your posts every day. You are always in my prayers. You have such a positive, upbeat attitude and it is a joy to read your blog. I sure hope the radiation helps you. I am sorry for everything you have had to go through. Take care. Lauren and I are tooting for you in Ohio!!

  2. Haha. I meant to say rooting. We do tend to toot from time to time too!! You know how that goes.

  3. I was eating fresh blueberries this morning and almost choked on one when I got to the "tooting" part of your comment! Too funny! HUGS coming your and Lauren's way!!